It was so upsetting to watch him get so upset and not understand why he was being tied down and hooked up.
I just about lost it, but I was able to hold my cool long enough for him to be hooked up and fall asleep.
Dan came home and was so upset about it that he couldn't sleep.
I was really stressed out about this because I knew that they would need 4-6 hours to analyze findings- but I was set at ease slightly when we arrived and I found out it didn't have to be 4-6 hours straight, just 4-6 hours total.
Well, it was a really rough night. Cameron fell asleep around 9:30- but slept really fitfully and restlessly until 12:30- he had woke up 3 times, and then I finally gave him some warm milk at 12:30am, and he was out! He finally fell into a good sleep pattern from then through 3:30- the respiratory tech over his study had to come in because one of his leads was unhooked, and she couldn't find where- unfortunately looking woke him up- and the frustration for her, Cam, and I, was that it wasn't even unhooked on him, but on the machine and he didn't need to be disturbed. How would she know without checking though?
Anyway, I tried for a long time to get him back to sleep, and I succeeded, until I put him back in the crib, then he just would not sleep, only play. We gave it a good effort, and decided to just unhook him an hour and a half early.
I think they got 4-5 hours, it will be cutting it close. Amber- our tech- I really liked her- said that if they didn't get enough hours, they will let us know and try to reschedule for as soon as possible, otherwise we will follow up with the sleep specialist in about 2 weeks.
After much deliberation, tears shed by all 3 of us over all the trauma that was this study, we won't repeat it. So I really hope and pray they got the info they need to help my son!
Here he is getting hooked all up!
All upset, but done and ready for bed-
2 comments:
So sad! That just makes me cry for all of you. It would be so hard to go through that! I hope you get your answers!
Poor little guy but you got to do what you got to do and I know that all 3 of you need to sleep ALL night! I'm anxious to hear the results so keep us posted!
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